To the moon and back!

Joseph I love you with all my heart. Its hard to believe you are 29 months old. You have come so far and we are so proud of you. You are doing so well and started to walk in August and now you are off all over the place. Its like you see life in a whole new light.
Little man it was so hard for me to let you go to preschool a couple days a week this year, but you love it and you are doing so well.
Joseph you are a joy and a blessing and we will always stand by you, Always!
You are such a gift to us and you help us to enjoy each day to the fullest.
You may be diagnosed with Prader Willi Syndrome but that's not what defines who you are.
Thank you for letting me be your Mom.
    "I love you to the moon and back"

May 18th

Sweet Jacob I am so sorry I never put this post in the blog it was written but I never posted...:)

Happy 9th Birthday to the little boy who made me a Mom. Jacob I love you with all my heart, you are an amazing young man with a heart of gold. You are such a wonderful son and we are so proud of you. Its hard to think in 9 more years you will  be off to College and on your own. Sooo if you don't mind I am going to hug you a little tighter and enjoy every moment I have with you because I know how fast these last 9 years have gone. I love you to the moon and back.. xxoo Love Mom

 

 

Faith, Hope and Love

These 3 words can easily describe our life since sweet Joseph was born. JD and I stand in complete FAITH in what we are going through with Joseph. HOPE for God to heal Joseph whether it be by a way we can't explain by mans eyes or by giving the doctors the answers they need to find a cure. LOVE.. Our family and friends have lived this out by all the support they have given these last 2 years. Last  Friday was our 2nd  Annual Joining Together for Joseph fundraiser. Over $ 10,000 was raised for the Foundation for Prader Willi Research , I am so grateful for everyone who made this event such a success.
Thank you for loving Joseph as much as we do. Joseph is truly doing amazing and we are so blessed to call him our son...

And now these three remain: Faith, Hope and Love. But the greatest of these is love.  Cor. 13:13

 

 

 

Last day of school!

Its hard to believe that today is the last day of school for Jacob and Joshua.. Can it be that my boys are going into 1st and 3rd grade. Where have my sweet babies gone! This year has been very bitter sweet for me. The reason I wanted to be a stay at home Mom was so I could be a part of my kids lives and be around when they needed me. I have to say I have felt like quite the failure in this department this year.

Sweet Joseph is in 7 therapies in 5 days so it leaves me little free time. So I have missed pretty much every field trip, their friends birthday parties and other activities. This is the first year I am not close to any of the moms in their classes. I feel like the outsider looking in at times when I go to functions. This has honestly been the hardest year so far for me, but I would not change it for anything. Jacob and Joshua are the most understanding kids. They don't make me feel bad if I can't make something. They say "Mom Joseph needs his therapies" God has shown me so much Grace through my kids this year. They are growing into these amazing little men that I love with all my heart. They know when I need a hug or sometimes Jacob just sits and leans in next to me, he knows when I need that..

As hard as this year has been its also been blessed. Jacob and Joshua are amazing students and have done so well this year. Joseph with all his therapies is growing in leaps and bounds.  I am blessed by my sweet family who love me even after I lose my cool, or burn their dinner. I know God is doing amazing things in our lives and is working on some things that I am struggling with, but in all this I stand in Faith!

 

May 11, 2009

Happy 4th Birthday sweet Ella. You are my girl and I love you so much. I am so blessed to have you as my daughter. I love having you as my partner in crime to shop with get our nails done together and to do girlie things together. You are our little princess... I love you to the moon and back!xxoo

May 8 2006

Happy 7th Birthday to the sweetest boy I know! Joshua you are so funny and have the softest heart even though you like to act tough;) Thank you for giving me those hugs when you know I need them and quoting scriptures when I am struggling with something. God is going to use you to do amazing things. I love you with all my heart . Xxoo Love you to the moon and back!

May 6th 2011

Happy 2nd Birthday Sweet Joseph. I can not even begin to tell you how much I Love You. You are such an amazing boy and I am in awe of you daily. You have worked so hard this last year, not many people could do 7 therapies in 5 days, but you... did it and do it each week and I am so proud of you. You have come so far these last 2 years. Sweet boy I promise you I will continue to advocate for you till the day I die and I promise to be the best Mom to you. Some people label you a special needs child, but in my eyes you are just what I needed:) I love you to the moon and back..XXOO

 

Wait where did 2012 Go!

Wow what a year 2012 has been! Its so hard for me to wrap my mind around its 2013. Its been so long since I have updated my blog, but I am going to try and be better this year.  
I Hope:)

Joseph is doing amazing, we saw Dr Miller in September and he got rave reviews. He amazes me everyday. He is talking and trying to walk, but we have a long way to go. I can not even begin to describe the love I have for this little guy. I truly have no words.

Jacob is becoming a little man. Joseph and him have a special bond. I see it in their eyes when they hang out together. I love to sit back and watch these 2 and the love they have as brothers and friends.

Joshua well he is still my stinker but I am so proud of him. I watch him with his friends and new people he meets and I will hear him say "DO you have Jesus in your Heart" then he proceeds to tell them how you can have Jesus in your heart like he does. I know God is going to use this little boy to do great things!

Ella Bella well what can I say she is a true princess. Wow she keeps me on my toes. I love this little girl so much. Its so fun to have a little girl to do girly things with!

As we closed 2012 and I looked back on things, I thanked God for my amazing family. It also made be realize that ever since Joseph was born I have truly had a reality check on whats important. Him being diagnosed with Prader Willi rocked my world and my heart like never before. It also made me realize I am stronger then I ever thought I would and could be. I have made some amazing friends through this journey, with doctors, nurses, therapist, and some amazing moms! This community of Prader Willi parents is nothing I have ever seen. From the moment Joseph was diagnosed I was rallied around by other moms who were on this journey with me. There are so many of these Moms I have never met, but we call, text, facebook and we have a special bond. 
These Prader Willi Moms are part of my new family. A family I did not choose to be in, but one I am blessed to be a part of..

Angela XXOO